Friday, August 12, 2016

Options

We had our appointment with the prosthetic company a few days ago. I'm still trying to digest things. I think Bella is filled with excitement. I'm still trying to process it all. Insurance, myoelectric, body powered, occupational therapy, cost, time, learning, exploring, deciding, attempting. Never once I have I doubted my daughter's ability to figure things out in her own way. I can't tell you how many times I've practiced one handed shoe tying, zipping and buttoning. I've thought about how she'll open makeup containers, curl her hair or paint her nails.

Our appointment opened a few doors. Bella is dead set on a hook, she does NOT want a hand. She initially (a few years back) said they look "creepy". Currently she said "They aren't really creepy any more it's just not what I want". Fair enough, her body, her decision. So we discussed "hook hands". We have a couple of options. A body powered hook that would strap around her body. Excuse the lame picture but I wanted people who are clueless about this stuff to understand what it may look like. Basically the straps go around the shoulders and under the armpits. And you thought a bra was constricting!!


She's decided that the body powered hook would get in her way and bother her. She's for sure my child! I hate tight elastics, anything that constricts or doesn't allow me to move freely. The myoelectric would cover most of her left forearm, however it would have motors and such so that she does not need straps around her little body. She says that this would be a "good one for me because I'm not all strapped up".



For now, we wait. We wait for the company to get the myoelectric sensors so we can do some testing to be sure she's a candidate for a myoelectric. We wait for the prosthetist to talk with our insurance about costs and options. Did I mention how irritated I am that the insurance gets a say in what will work for her? It bothers me that someone sitting behind a desk gets to decide, that person probably has two completely functional hands and has no idea what their life would be like with less... It's like having someone tell me what pants will fit me best without knowing what I'll be wearing the pants for or what size I wear... Okay so yeah, we wait. Once those things get figured out, we go back in. Bella does the sensor testing and then we do some molds. We just had measurements done at our appointment the other day.

I'm good at waiting... or not!


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